In the first six months of the project, WP6 drafted deliverable D6.1 Established Assessment Regime. This document described guidelines for assessing large medical cohorts (LMedC) for their suitability to be included in a future research infrastructure (RI). These guidelines take into account ethical, legal and societal issues (ELSI), as well as the FAIR guidelines for responsible scientific data management, and how FAIR and ELSI pertain to data sharing and data protection.
The deliverable was drafted within WP6 and complemented with inputs from members of WP3, WP4 and WP9. D6.1 is publicly available on Zenodo here. It is a living document and will be updated as other work packages progress.
Nearing the end of the first 12 months of INTEGRATE-LMedC, WP6 is working on the mapping of innovative engagement and incentive strategies with participants, data users and cohort managers for using and sharing data.
Read WP1, WP2, and WP3 updates here: https://www.integratelmc.eu/news/integrate-lmedc-six-month-update/.
These are the current activities. If you are interested in getting involved, please contact us at hello@integratelmc.eu.
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