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INTEGRATE-LMedC: 18-month update
This article is 858 words and is a 4-minute read For an overview and detailed insights into the work packages, visit our website where you will find comprehensive information, updates, and key highlights from the INTEGRATE-LMedC project. WP1 – Project Management and Coordination, period 1 WP1, led by NTNU and supported by BBMRI-ERIC, has been assisting project partners with their…
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Latest developments in Work Package 15: Cohort Access and Secondary Data Use Policy
Work Package 15 activities started in month 13. The main objective is to develop guiding principles for how to make cohort resources as widely useful as possible to the research community, whilst considering ELSI issues. This will include the development of guiding principles for cohort access policies for primary studies and secondary data use and a concept for…
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WP4: The current European RI landscape – latest updates
Work Package 4 activities started during month 13. WP4 focused on mapping European and selected international research infrastructures that provide services to large medical cohorts. Led by ECRIN, Task 4.1 provided a detailed overview of the services, tools, and capacities offered across the entire research-data lifecycle, from study design and governance to long-term data exploitation.…
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WP9 – Data stewardship and sharing models: key findings and outcomes
WP9 – Data stewardship and sharing models has successfully concluded, and this article summarises the team’s accomplishments. The team was led by University Medical Center Groningen MOLGENIS team (UMCG) with contributions from Fraunhofer, EBRAINS, BBMRI-ERIC, MU, NTNU. The objective of WP9 was to establish sustainable strategies for IT technologies, data stewardship, and federated analysis within the INTEGRATE-LMedC network. Over its 12-month duration,…
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Healthy beginnings, Hopeful Futures: a BBMRI-ERIC story for the WHO World Health Day
On the occasion of the World Health Organization’s global initiative for World Health Day, themed ‘Healthy Beginnings, Hopeful Futures,’ BBMRI-ERIC has highlighted the work of the INTEGRATE-LMedC project in its latest multimedia story, emphasising the critical role of large medical cohorts in addressing unmet medical needs, particularly in the case of endometriosis, a long-overlooked but…
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WP3 – Large Medical Cohorts: A comprehensive Gap Analysis of Large Medical Cohorts in Europe
WP3 – Large Medical Cohorts has successfully concluded and this article summarises the team’s accomplishments. The team comprised leadership by FSJD-CERCA with contributions from BBMRI-ERIC, NTNU, UMCG, ECRIN, MU, QI.LAB.Med. The objective of WP3 was to enhance the understanding and use of large medical cohort data across Europe. Over its 12-month duration, it focused on conducting a…
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INTEGRATE-LMedC: twelve-month update
This article is 833 words and is a 4-minute read. Project overview The project was officially launched during a kick-off event held in Trondheim, Norway, on April 8, 2024. For an overview and detailed insights into the work packages, visit our website where you will find comprehensive information, updates, and key highlights from the INTEGRATE-LMedC project. WP2 – Outreach, period 1…
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WP6 – ELSI, FAIR and fairness: six-month update
In the first six months of the project, WP6 drafted deliverable D6.1 Established Assessment Regime. This document described guidelines for assessing large medical cohorts (LMedC) for their suitability to be included in a future research infrastructure (RI). These guidelines take into account ethical, legal and societal issues (ELSI), as well as the FAIR guidelines for…
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INTEGRATE-LMedC: six-month update
This article is 963 words and is a 5-minute read. Project overview The INTEGRATE-LMedC consortium will develop a new concept to guide and support decision-making for the next-generation research infrastructure (RI) to facilitate efficient utilisation and harmonisation of large medical cohorts (LMedC), and to accelerate scientific and medical breakthroughs in Europe and beyond. Achievement of…
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INTEGRATE-LMedC project kick-off in Trondheim
The INTEGRATE-LMedC project, coordinated by BBMRI-ERIC in partnership with nine Member states, kicked off in Trondheim on 08 April 2024. INTEGRATE-LMedC will develop a concept to integrate large medical cohorts (LMC) to facilitate their efficient utilisation for translational research and the patient’s and society’s benefit. The concept will seek to accelerate scientific and medical breakthroughs in Europe…